Hemophilia Federation (India) pushes for inclusion of Hemophilia in “Benchmark Disabilities” category
The Hemophilia Federation (India) (HFI) on the occasion of its Founder’s Day on November 24, 2012, assembled with a group of hemophilia patients at Jantar Mantar from 10 am to 12 pm, to urge the Government of India (GoI) to include hemophilia in the category of “Benchmark Disabilities”.
The HFI appealed the Ministry of Social Justice and Empowerment, GoI, section 39 of Disabilities Bill 2012 and include hemophilia in the category of Benchmark Disabilities.
The appeal was made following the release of the draft Rights of Persons with Disabilities Bill, 2012 (Section 39, Chapter 6) in September 2012 by the Department of Disability Affairs, Ministry of Social Justice and Empowerment, GoI. Of the 18 benchmark disabilities, 16 have been included while Hemophilia and Thalassemia, the critical life-threatening bleeding disorders have not been included in Section 39.
Dr. K. Ghosh, President of HFI and Director of National Institute of Immunohaematolgy, KEM Hospital, Mumbai, said that most of the patients registered with the organisations are disabled to varying extents. The widespread prevalence of disability amongst patients, its social costs in terms of incomplete education and unemployment, justifies the need to include hemophilia as one of the conditions under the Act.